Americans with Disabilities Act community inclusion scene with people using HCBS supports
History and context

How care moved closer to home and community.

Home and Community-Based Services grew from advocacy, policy change, and a simple belief: people should have the chance to live, choose, and belong in everyday community life.

Three adults with developmental disabilities in a studio portrait representing dignity, choice, and community inclusion
Why this history matters

HCBS is more than a funding model. It is a shift in how people are seen.

The history of Home and Community-Based Services is the history of people with disabilities, families, advocates, providers, and policymakers challenging the idea that support must happen away from ordinary life.

That shift matters because the setting of care shapes dignity. A person's home, neighborhood, routines, relationships, and choices are not extras. They are part of what meaningful support is meant to protect.

Milestones

The milestones that shaped modern HCBS.

Several policy, legal, and advocacy milestones helped move long-term support away from institution-centered care and toward home and community life.

Care was often tied to institutions

Mid-1900s and earlier

For many years, long-term disability support was commonly organized around large facilities and institutional settings. Families and advocates began pushing for a different future: support that allowed people to remain connected to home, family, and community life.

Medicaid created a national funding foundation

1965

Medicaid became a major source of health and long-term care funding. In its early decades, many long-term services were still easier to fund in institutional settings than in ordinary homes and neighborhoods.

HCBS waivers opened a different path

1981

Section 1915(c) Home and Community-Based Services waivers gave states a way to use Medicaid funding for certain supports outside institutions. This helped expand services in homes, day programs, and community settings.

The ADA strengthened disability civil rights

1990

The Americans with Disabilities Act made disability discrimination illegal in major areas of public life. It helped strengthen the legal and cultural foundation for accessibility, inclusion, and community participation.

Olmstead affirmed community integration

1999

In Olmstead v. L.C., the U.S. Supreme Court recognized that unjustified institutional isolation can violate the ADA. The decision became a landmark for the idea that people with disabilities should receive services in integrated community settings when appropriate.

Money Follows the Person supported transitions

2005 onward

The Money Follows the Person demonstration helped states rebalance long-term services by supporting people who wanted to move from institutions into community-based settings.

The Affordable Care Act expanded HCBS options

2010

The Affordable Care Act added and strengthened tools that encouraged states to invest in home and community-based supports, including options focused on attendant services and balancing long-term care systems.

The HCBS Settings Rule clarified expectations

2014

CMS issued a final rule describing qualities expected of Medicaid HCBS settings, including community integration, privacy, dignity, choice, autonomy, and person-centered planning.

The movement continues today

Today

Modern HCBS is still evolving. The central question remains practical and human: how can support help people live with more dignity, choice, safety, belonging, and everyday opportunity?

What changed

Modern support centers everyday life.

HCBS helped shift the focus from where a person can be placed to how a person can be supported with dignity, safety, and choice.

Home

Support should help people remain connected to familiar routines, relationships, and places.

Choice

People should have meaningful input into daily decisions, goals, schedules, and support.

Community

Services should support participation in ordinary community life, not separation from it.

Dignity

Care should protect privacy, respect, autonomy, and each person's voice.

Further reading

Sources for the timeline.

These official resources provide more detail about Medicaid HCBS, Olmstead, and federal HCBS settings expectations.